Autoimmune Inner Ear Disease (AIED)


July 11, 2008: 8:40 am: Dr. NeilAutoimmune Inner Ear Disease (AIED)

by Neil Bauman, Ph.D., with Susan Stoner

Susan Stoner, a lawyer wrote:

I am writing to you because I have discovered a way to reverse the symptoms of progressive Autoimmune Inner Ear Disease (AIED). After many tests I was diagnosed with bilateral AIED. The tests showed I had the classic heat shock protein in my blood. No treatments worked. Eventually, with the assistance of my oto-neurologist, I underwent plasmapheresis at a local hospital. [Ed. note: plasmapheresis is a procedure, similar to dialysis, that removes antibodies from the bloodstream, thereby preventing them from attacking their targets—in this lady's case, the inner ear.] I experienced significant temporary improvement but limited long term improvement.

By June of 2006, both ears were involved. Tests showed that, in order for my right ear to hear, the sound needed to be at 66 decibels. My ability to distinguish words was at 8%. My left ear was following suit. We’d began discussing the probability of my needing cochlear implants.

Because I had noticed a marked reduction of the “fullness” aspect of the disease after plasmapheresis, I decided to try lymphatic drainage. [Ed. note: lymphatic drainage is a special type of massage therapy used to stimulate lymph flow in the body and to clear/reduce blockages in the lymphatic system.] I underwent the drainage procedure on a weekly basis. Initially I was very sick after each treatment as my liver tried to process toxins. Each week, however, I experienced improvement in my symptoms.

(Incidentally, prior to the plasmapheresis, I had plantar fasciitis in both feet that wouldn’t get better. One reason I decided to explore the lymphatic drainage approach is that the plantar fasciitis was immediately cured by the plasmapheresis. My problems seemed to stem from undiagnosed/treated Lyme disease in 1992. So, I have systemic autoimmune problems affecting my joints, thyroid, digestive tract and I’ve been diagnosed with Sjogren’s syndrome which is autoimmune and affects eyes, mouth etc. The lymphatic drainage therapy positively affected all of these to a lesser degree.)

After one year, I returned for a hearing test. My left ear was completely normal. I could hear in my right ear at 25 decibels and could distinguish words at 98%. I continue to have mild tinnitus in the right ear.

At two years, I have maintained the improvement. The downside is that I find I must continue the lymphatic drainage therapy to maintain the improvement—although on a greatly reduced schedule. And, insurance won’t pay for it.

My understanding of why lymphatic drainage works is that autoimmune diseases causes swelling which, in turn, causes the lymph system to malfunction. Then the toxins sit in the lymph system instead of getting flushed away through the blood and liver at a normal rate. When the lymphatic massage releases that blockage, those old toxins flood the blood and liver.

I am an attorney. I was facing the end of my career and the likelihood of cochlear implants. This was a terrifying experience and I had to fight very hard to find a solution. It took me seven ear doctors just to get a definitive diagnosis of AIED.

The reason I am writing this is that there are other people who are in the same situation. I believe they should have the choice of exploring the option of lymphatic drainage to reverse their AIED symptoms. Perhaps they will have the same good results I have had.

If you have AIED or other immune system conditions, you might want to investigate for yourself whether lymphatic drainage might help you. Read an excellent article on the lymphatic system here. In fact, you should snoop around the entire lymphnotes website. It contains a wealth of information on lymphatic drainage, and where you can find the professionals that provide lymphatic drainage therapy. For example, this page that lists lymphatic drainage treatment facilities by state.

Print This Post Print This Post
August 31, 2007: 8:44 pm: Dr. NeilAutoimmune Inner Ear Disease (AIED)

by Neil Bauman, Ph.D.
 

Autoimmune Inner Ear Disease (AIED) is a baffling condition to treat. Sometimes it occurs as the result of untreated allergies. One man explained,

After undergoing steroids and all sorts of medical treatment with no results, I finally heard about allergies being a cause of AIED. After being tested, I found I have terrible environmental and food allergies. Allergy shots have really helped and I am improving now. I also found that in my case, MSG (monosodium glutamate) and various food additives cause attacks of hearing loss and tinnitus. These substances can cause immune system dysfunction. The more you stay away from such things, the better you feel. Your body doesn’t turn on itself for no good reason–it has a little help! Please pass this information along to other people who suffer this horrible agony.

If you have been diagnosed with AIED, make such you see a good allergist and have yourself checked out for allergies that might be the underlying cause. If so, treating your allergies may bring your AIED under control without any other treatment needed.

To learn more about AIED, read my article “Autoimmune Inner Ear Disease (AIED)“.

Print This Post Print This Post
October 3, 2005: 12:15 pm: Dr. NeilAutoimmune Inner Ear Disease (AIED), Ototoxic Drugs

by Neil Bauman, Ph.D.

A man recently wrote:

I recently read your article on AIED. I was diagnosed with AIED a few months ago, and I’ve been through most of the treatments, prednisone, methotrexate. and cortisone injections through a tube. My doctor wants me to try Remicade, a new biological type drug. What do you think about this drug and AIED?

Personally, I think that with AIED the cure can be worse than the disease, especially for some people. I was just talking to a man yesterday who took Prednisone and Methotrexate and ended up with kidney cancer because of them. Not a good trade off in my opinion.

I don’t know much about Inflixmab (Remicade) and its long term effects on our bodies. After reading about the serious side effects it can have, including immune problems, cancer and death, I must say I don’t like the odds, especially since I haven’t seen any data that proves it will cure AIED. Personally, I wouldn’t be in any rush to take it.

In regards to your ears, Inflixmab can cause dizziness and vertigo. Three other drugs in this same family can cause hearing loss so this drug may be found to do the same.

To learn more about Autoimmune Inner Ear Disease (AIED), point your browser to http://www.hearinglosshelp.com/articles/aied.htm.

Print This Post Print This Post