May 11, 2009 Issue
HEARING
LOSS HELP E-zine
"The premier e-zine for people with hearing loss"
Volume 4, Number 2 May
11, 2009
Publisher: Neil Bauman
neil@hearinglosshelp.com
http://www.hearinglosshelp.com
Copyright Center for Hearing Loss Help 2009
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"Hearing loss may change your life,
but your life need not be any less
rewarding and fulfilling
because you have a hearing loss."
— Neil Bauman, Ph.D.
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================================================== In this issue ==================================================
Dear Readers
1. News Items
— Gentamicin Treatment for Meniere's Disease—Here's the Scoop
— Driving Safely with Hearing Loss
— Seven Myths Hearing People Harbor Concerning Hard of Hearing People
— Otosclerosis, Stapedectomies and MRIs
2. Beware of (Ototoxic) Drugs That Can Damage Your Ears
— Will Taking Sodium Thiosulfate Prevent Ototoxicity?
— Drugs and Tinnitus: Put Yourself in the Driver's Seat
3. Answers to Your Questions
— Can Excessive Exercise Cause Hearing Loss?
4. Tinnitus
— Neuromonics: Is It For Real?
5. Effective Coping Strategies
— How Do I Best Cope with My Spouse Who Won't Do Anything About His
Hearing Loss?
6. Information on Hearing Aids, Cochlear Implants and/or Assistive Devices
— T-coils Have Been Around Since WHEN?
===============================================
Dear Readers
===============================================
If you have been wondering where your regular monthly
HearingLossHelp eZine got to for the past couple of months,
blame me. I got tied up in two major projects plus all my
regular duties, and I just plain ran out of time.
Now that I've completed these projects, here is your next
edition of this eZine. I know that some of you eagerly await
each edition.
Welcome to the hundreds of new subscribers that have joined
us since the last issue of HearingLossHelp eZine came out.
One of the projects I just completed is my new seminar series
called "Keys to Successfully Living with Your Hearing Loss".
Too often, people cope with their hearing losses in a
haphazard way. Many think that just getting hearing aids is all they need to do.
Surprise! Getting properly fitted hearing aids is only one of
the 6 critical keys to successfully living with your hearing loss.
There are 5 other keys that are equally important.
Learn about these 6 critical keys in my
new seminar manual.
Be one of the first to read this new manual, and save 12% in
the process. (This offer is for HearingLossHelp eZine readers
only and is good until May 31st. so order your manual now
before you forget.) Just put the word "KEYS" in the coupon
code box in the shopping cart and click on "Apply" to receive
your special discount.
===============================================
1. News Items
===============================================
Gentamicin Treatment for Meniere's Disease—Here's the Scoop
by Neil Bauman, Ph.D.
A lady wrote: "Dr. Timothy Hain has written an
article about
low-dose Gentamicin treatment.
What do you have to say about this treatment?"
I respect Dr. Hain and his work, although, in my opinion, he is
too conservative when it comes to the side effects of ototoxic
drugs. By this I mean that he doesn't think the ototoxic side
effects are as common and severe as they really are.
Gentamicin, as a treatment for Meniere's disease, has been
around for quite a while. As the above article explains, in the
past, high-dosage Gentamicin treatments have resulted in
pretty significant ear problems including hearing loss.
This new low-dose protocol seems to cause far less damage
to the inner ear than the high-dose one, and that is all to the
good.
However, there are a few things this article doesn't mention of
which I think anyone contemplating this procedure should be
aware.
First, a significant portion of the population have a genetic
variant that leaves them very susceptible to aminoglycoside
ototoxicity—much more so than the general population. Since
Gentamicin is one of the aminoglycosides, it would seem wise
to be tested to see if you have the 1555A-G variant of the 12S rRNA gene (see page 109 in my book "Ototoxic Drugs Exposed for
more information), and if you have it, really consider whether
the supposed benefit will be worth the greatly increased risk.
Second, this treatment can work great and "kill" the balance
system in one ear, hopefully eliminating the severe vertigo.
But what happens if later your Meniere's switches to your
other ear, as it does in approximately 20% to 25% of the
people with Meniere's?
With your balance system dead in one ear, you don't dare do
the same procedure on your other ear, or you will be left
without any inner ear balance function at all. Among other
balance problems, this will almost certainly result in such
conditions as oscillopsia (bouncing vision), ataxia (staggering
gait like you were drunk), blurred vision and other problems
with your eyes. If this happens to you, you will never be able to
drive again. You will likely find movement such as riding in a
car, or even just watching action movies on your TV can make
you "sick".
Third, there are no guarantees that even in low doses, the
Gentamicin will not affect your hearing. Gentamicin typically
damages the balance system (a good thing in this case)
more than it damages the hearing system (a bad thing)—but
this is not always the case. Are you prepared to lose some or
all of your remaining hearing in that ear? It can and does
happen.
If you have severe vertigo with your Meniere's, (and I can't
even imagine what that must be like) and nothing else works,
you may want to try this treatment. Remember, this is a
treatment of "last resort"—one not to be taken lightly.
If you have considered the above points, read the above
referenced article carefully, done your own research and
talked it over with your ear doctor, you are ready to make an
informed choice. What you choose is up to you.
To learn more about Meniere's Disease and some of the things you can do to
help bring it under control, check out "Please
Make My World Stop Spinning—The Agony of Meniere's Disease".
—o—o—o—o—o—o—o—o—o—o—o—
Driving Safely with Hearing Loss
by Neil Bauman, Ph.D.
“How do you drive if you can’t hear?” is a question I’ve been
asked a number of times. And I normally answer, “I use my
eyes when I drive. What do you use?” “Judy”, a hard of
hearing lady, responding to this same question, quipped, “I use my hands. My ears aren’t able to reach the steering
wheel.”
Indeed, when my wife (before I met her) first noticed she was
losing her hearing, one of her first worries was, “Will I still be
able to drive?” Apparently, many people think you need to be
able to hear in order to drive. I think a better criterion is being
able to see!...
The above is the introduction to my article "Driving Safely with
Hearing Loss" that was published in the Spring 2009 edition
of Hearing Health magazine.
Read the rest of this
article, which is packed with practical information on driving
safely even though you can't hear honking horns, sirens or
your car's warning alerts.
—o—o—o—o—o—o—o—o—o—o—o—
Seven Myths Hearing People Harbor Concerning Hard of Hearing People
by Neil Bauman, Ph.D.
Hearing loss is typically misunderstood by the general
population. Thus, it is not surprising that many hearing people
have bought into the following 7 myths regarding hearing loss
and the people with these losses.
Myth No. 1. Hard of hearing people are less intelligent than
"hearing" people. Thus, they attach this social stigma to
having a hearing loss. This myth is so deeply ingrained in the
general population that even today most hard of hearing
people refuse to wear hearing aids for fear of being thought
stupid. The truth is, hard of hearing people are just like other
people. Some are smart and some are not. Don't blame any
perceived lack of intelligence on hearing loss. Place the
blame where it should be—on communication difficulties.
Myth No. 2. Wearing hearing aids returns hearing to normal.
Not true. Hearing aids can improve hearing—typically reducing
the hearing loss by half—but never bring it up to normal. Thus
hard of hearing people still have a hearing loss even when
wearing their hearing aids. They often need to supplement
what they hear by using assistive devices, by speechreading
and by using other effective hearing loss coping strategies.
Myth No. 3. Hard of hearing people have selective hearing.
They only hear what they want to hear, but they can hear if they
really want to. While it is true that hard of hearing people do
indeed have selective hearing, it is not because they don't pay
attention. Rather, it is because their ears do not hear certain
frequencies of sounds. They have no choice over which
sounds they hear and don't hear.
Myth No. 4. Only old people have a hearing loss. Not true.
Because of excessive noise exposure, taking medications
that damage ears, ear infections and other factors, hearing
loss affects children, adults and seniors alike. One study
showed that on any given day, 15% of the children in
elementary schools have a significant hearing loss.
Myth No. 5. When you have a hearing loss you somehow
(magically) become a good lip reader. Thus, since hard of
hearing people can read lips, it doesn't matter whether they
hear or not. Fact: lip reading, (now more correctly called
speechreading) while invaluable, is far from perfect. Only
about 30% of English sounds can be easily read on a
person's lips. That leaves the hard of hearing person
guessing at the remaining 70%. While a few are remarkably
good at this, no one is perfect.
Myth No. 6. If a hard of hearing person can't hear you, raise
your voice at them. The truth is, most hard of hearing people
need you to speak up just a bit, but they really want you to
face them, then speak slowly and enunciate clearly. This is
because when you lose some of your hearing, you hear
people talking, but often you can't understand much of what
they are saying.
Myth No. 7. Hard of hearing people understand sign
language. Therefore, in order to accommodate people with
hearing loss at meetings, you just need to provide a sign
language interpreter. Fact: of the 70 million people with
hearing loss, fewer than 1% know how to sign. Hard of hearing
people typically need to use, in addition to their hearing aids,
various assistive devices and real-time captioning (CART).
And one bonus myth—Myth No. 8. If you speak normally, you
obviously can't have much of a hearing loss, therefore you are
really faking it when you speak properly but say you can't hear.
The truth is, the vast majority of hard of hearing people speak
normally. Some people that have more severe hearing losses
and don't wear hearing aids talk louder than normal. Other
people with profound hearing losses speak in a flat tone (deaf
speech). And surprise, some people with severe to profound
hearing losses speak perfectly normally too. I'm one of them!
—o—o—o—o—o—o—o—o—o—o—o—
Otosclerosis, Stapedectomies and MRIs
by Neil Bauman, Ph.D.
Otosclerosis (OH-toe-sklare-OH-sis) is a condition where
spongy bone grows in the middle ear and often "fixes" the
stapes (stirrup), the third bone in the middle ear, to the oval
window so it can't vibrate freely. The result is a conductive
hearing loss. To correct this condition, an ear specialist
performs a surgical procedure called a stapedectomy (stay-pee-DEK-toe-me). He typically removes the fixated stapes
and replaces it with a plastic or metal prosthesis.
Now comes the insidious part. IF the prosthesis contains any
magnetic metal (iron, nickel, cobalt), then you mustn't have an
MRI or you can totally destroy your life in a heartbeat and
never know about it until too late. This actually happened to
"Stephanie" (not her real name). Here is her story. She writes:
"I came upon your article "Protect Your Balance System—Or
Else..."
and was so happy to find something that describes me so
well.
Five years ago I had a MRI done. I explained to the attendant
that I have a wire [the stapes prosthesis] in my inner ear to
help with my hearing loss. (I had this surgery back in 1972. I
had it looked at again in 1985.) However, in 2004, the hospital
did a CT scan and said there was no wire there. I then had the
MRI. Immediately upon coming out of the machine, I
discovered I had lost my balance. I could not walk. I was
nauseated, I could not hear as well, and the noise in my head
was unbearable.
To make a long story short, I had to have emergency surgery
on my ear to see if any fluid was draining [perilymphatic
fistula]. I then had to take physiotherapy for two years for my
balance. My eyesight also changed 50%, but has since gone
back to the way it was.
After this fiasco, the hospital had another look at my CT scan
and they saw the wire but it was too late. Please let people
know just how much damage can be done to your body if
doctors miss finding this metal prosthesis.
My ENT said the damage to my inner ear was like getting hit in
the head with a baseball bat at full speed. (That is what the tiny
stapes prosthesis did to my inner ear under the influence of the
powerful magnets in the MRI machine.)
I have come a long way in healing but I still have issues. I am
still learning everyday about things I cannot do. My first time
going to a movie after the MRI was a disaster. I had to keep
my head down during most of the movie. I was sick to my
stomach, and my head felt like it was spinning. But I did not
know this was from the damage caused because of the MRI
and having a wire in my head.
I also lost more hearing in my ear. But it is different now than
before. I can hear sounds, but I cannot tell where they are
coming from. You can be right behind me talking but I do not
know where you are. I call out to the person (usually my family)
asking where are you. (To them, this is funny but it certainly
gets to me at times.)
Also, if two people are talking, I cannot tell what they are
saying. I can hear their voices, but the sounds are jumbled
together.
If I am talking on the phone and another noise presents itself
(like someone asking something of me) I lose the
conversation on the phone and I don't know what the other
noise is, or what the person has said. Trying to cope in
public—talking to people—is difficult. Ordering a coffee, lunch,
etc. with noise around me is very hard. To see the look on the
other person's face, like I am retarded, is hard on me. I
usually get my husband, or my girls, to order for me instead. It
makes me want to stay home because it is the only place I am
comfortable. Needless, to say, I have not returned to work.
You talk about the emotional side of hearing loss, and until you
go through this yourself, it is hard for other people to
understand. My family is still trying very hard to understand
what I can no longer do.
I can no longer multi-task. I cannot do two things at once. After
5 years, I still see this in my everyday life. For example, I
cannot walk down the stairs with something in each hand. I
have to put my body against the wall to steady myself and
even then it is difficult, and my legs are very shaky. I cannot
ride a bike anymore. It was such a shock to me when I first
tried. My hands were shaking the handle bars back and forth
with such force, that I could not stop. (I keep trying every year,
but it is the same every time, and has not improved.) I will
never get on a circus ride again in my life.
Walking is interesting. I feel every dip or hump in the road or
sidewalk that no one else feels. My body thinks I just stepped
down into a two foot hole, or I will not notice when the
pavement has gone up and I stumble. I constantly "bump" up
against my husband when we are walking together.
When I am in a store shopping, I cannot look at something
one way and then turn my head to the other side because I
get dizzy and it feels like I am being quickly shoved. This
feeling goes away quickly, but if I continue to turn my head
side to side, I get "shoved" again. Think how many times you
turn your head side to side in a day.
When I stand in the shower, I plant my feet firmly against the
sides of the tub, so my hands are free to wash my hair. I can
keep my eyes closed a little while now—long enough to rinse
the soap out.
And yes, when the lights are out or dimmed, I hold onto
furniture, walls, etc. to get around.
You talked about memory and being distracted. I have been
telling my husband I don't "feel smart" like I used to. I have
trouble finding words to have a conversation. I have to look at
the person talking with such an intense stare, and try as hard
as I can to hear and understand and remember what they are saying. It is so hard to understand why I am like this and
explain to my doctor, or husband, or family that I feel dumb. I
knew there was something wrong, but did not realize it was
related to the damage done to my inner ear.
Needless to say I have slowed down in life, which is why I only
feel comfortable at home.
Sometimes when I feel "down", I think my family is better off
without me and my problems. I know this is not true, but I can't
help feel like that at times. I have given them a copy of your
article and asked them to read it. I think what makes all of this
so difficult, is the fact that if you look at me, I look perfectly
"normal" but I'm not."
"Stephanie's" tragic story reveals the enormous life-changing
differences that can result from destroying the inner-ear
hearing and balance mechanisms in just one ear (and its even
worse if it happens in both ears).
Therefore, if you've had a stapedectomy where a metal
prosthesis was put in your middle ear, do not ever allow an
MRI to be done on your body. Some of the prostheses used
in stapedectomies are now made of plastic. If that is your situation, having an MRI shouldn't be a problem, but check
with your ear doctor to be sure.|
**************************************************
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Click here to learn more.
**************************************************
===============================================
2. Beware of (Ototoxic) Drugs That Can Damage Your Ears
===============================================
Will Taking Sodium Thiosulfate Prevent Ototoxicity?
by Neil Bauman, Ph.D.
A man wrote: "I was wondering if you had an opinion on a drug
called STS (Sodium thiosulfate). It's being developed to
protect chemotherapy patients taking platinum-based anti-cancer drugs from hearing loss. Is this (STS) something that
could be more broadly applied to the numerous drugs that
could cause ototoxicity?"
The research looks promising so far. It's certainly possible
that STS will help protect against hearing loss from some
ototoxic drugs. Because different ototoxic drugs have
different mechanisms of damage, the trick is to find an
"antidote" that interacts specifically with each ototoxic drug.
I think more likely, that there will be different drugs found to
protect hearing against specific classes of ototoxic drugs. For
example, Sodium thiosulfate may work best for the platinum-based drugs such as Cisplatin, Carboplatin and Oxaliplatin.
For the aminoglycoside antibiotics, maybe iron chelators such
as Deferoxamine will prove to be the ticket. Unlike how
Cisplatin affects our ears, preliminary research indicates that
aminoglycosides such as Gentamicin only are ototoxic when
they react with iron found in the bloodstream. Thus, in this
case, iron chelators that "soak up" excess iron in the
bloodstream may prove to be the route to go. Another
possibility is Aspirin taken with Gentamicin to do the same job.
In general, it seems that many ototoxic drugs produce free
radicals that damage the hair cells and cause them to die.
Thus, using free-radical scavengers to zap the free radicals
before they can damage our hair cells is probably a good way
to go as well. A couple of good, natural free-radical
scavengers are N-acetyl-cysteine and glutathione.
What I took the long way around saying is that doctors need to
research the exact mechanism that causes a drug to be
ototoxic and then find the specific antidote. I think they will
continue to come up with a number of specific antidotes as
I've shown above, and also a number of general ones.
Unfortunately, few drugs are specifically studied to determine
their ototoxic mechanisms. The notable exceptions are the
platinum drugs and the aminoglycoside antibiotics. The rest
get the short end of the stick, so it may be a long time before
anyone finds a specific antidote for them. However, in
general, the free-radical scavengers look like the most
promising line of protection against ototoxicity available at this
time.
To learn which drugs are (or can be) ototoxic, see "Ototoxic
Drugs Exposed". This book contains information on the ototoxicity of
763 drugs, 30 herbs and 148 chemicals.
—o—o—o—o—o—o—o—o—o—o—o—
Drugs and Tinnitus: Put Yourself in the Driver's Seat
by Neil Bauman, Ph.D.
"When “Jonathan” took a course of Erythromycin prescribed
by his doctor, the last thing on his mind was that this drug
would cause him to lose hearing in one ear, give him
hyperacusis and balance problems, and result in “horrific
bilateral tinnitus.”
No one warned “Eunice” that taking the anti-depressant drug
Amitriptyline would result in “screaming tinnitus”, a condition
much worse than her original depression.
Without warning, drugs that were prescribed for Jonathan and
Eunice to treat other health issues resulted in loud, intrusive
tinnitus, making their lives almost unbearable. (These stories
are true, although I’ve changed their names.)
Ototoxic (OH-toe-TOKS-ik) drugs are those medications that
can cause ototoxic (ear damaging) side effects to your ears.
Such drugs can cause hearing loss, hyperacusis (normal
sounds now too loud), tinnitus and other phantom sounds, and
a whole host of balance problems. This does not happen to
everyone who takes drugs by any means, but it does happen
to a significant number of unfortunate people.
Note this well. Even though a drug’s description lists tinnitus
as a side effect, it does not mean that you will develop tinnitus
if you take it. Some people do. Many don’t. The problem is
that you don’t know into which class you will fall. Therefore,
you should learn about the side effects of any drug before you
begin taking it. Be particularly cautious until you know that any
given drug won’t adversely affect your ears...."
This is the beginning of my article on drugs and tinnitus that
the American Tinnitus Association published in their April
2009 edition of Tinnitus Today.
Read the the rest of this article here.
**************************************************
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Click here to learn more.
**************************************************
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3. Answers to Your Questions
===============================================
If you have a question, or if something has been puzzling you
concerning your ears, email it to
mailto:neil@hearinglosshelp.com
and put "e-zine question" as the subject. Suitable questions will be answered here.
Can Excessive Exercise Cause Hearing Loss?
by Neil Bauman, Ph.D.
A man explained: "I came across your
blog post regarding
LVAS and hearing loss, and was looking for
assistance or more information.
I am a 48 year old with profound sensorineural hearing loss in
both ears. I've worn aids for 10 years and had many medical
and hearing specialist exams but no explanation of the cause.
It keeps getting worse, but mysteriously seems to vary,
becoming milder, or more severe, on a weekly basis. I've
never been able to correlate it to any food or activity.
Recently, I took a vacation during which I paused my regular
and typically strenuous aerobic and anaerobic exercise
activities. That week, my hearing was much better. Upon
return to my normal exhausting exercise, I'm having one of the
worst hearing weeks ever. This clued me to the possible
correlation between hearing loss and exercise. Your article is
the only one I find tying the two together. Is there any
treatment or test to verify if this is the cause?
The suggestion I fear is 'give up exercise'. I play competitive
tennis, and train extensively for it. It is a lifelong passion.
Making that sacrifice would be a drastic step, but at least I'd
like to understand if that could be an answer to a hearing problem that is now affecting my ability to earn a living and
support my family."
This is not a well-known subject, so you may have to do your
own experimenting. When you stopped exercising for a week
and your hearing returned to whatever degree sounds like a
positive correlation to me. In order to prove or disprove this
theory, do the same thing again. Stop exercising for a week
and see if the same thing happens. If so, you know that for
you, at least, strenuous exercise negatively affects your
hearing.
In order to find out why this is happening, I'd suggest you
have an MRI or CT scan specifically looking to see whether
you have Large [or Enlarged] Vestibular Aqueduct Syndrome
(LVAS). Be sure to have them measure the vestibular
aqueducts and give you the results in mm. Some doctors just
eyeball them and say—yup, you got LVAS. That is not the way
to do it.
As you read in the above-cited article, some people with
LVAS lose hearing due to strenuous exercise. You may be
one of these. If that is the case, don't think you have to give up
all exercise. What I'd suggest is give up strenuous exercise—where you really exert yourself—cut it down to moderate
exercise for a week and see what happens to your ears. What
you want to do is cut down the exertion in the exercise to
below where it causes hearing loss. Once you find that point,
then stay below it if you want to preserve your hearing.
Straining to run faster, lift more, etc. increases your
internal body pressure, and this is what causes the problem if
you have LVAS. Thus, exercise that doesn't substantially
increase your internal pressure should be OK.
Once you have tried the above and see what the results are,
then you can decide whether you want to protect your ears
(and to what level), or continue with competitive tennis (and at
what level). Perhaps there is a happy medium that will meet
both needs.
===============================================
4. Tinnitus
===============================================
Neuromonics: Is It For Real?
by Neil Bauman, Ph.D.
A man asked: "What can you tell me about Neuromonics. Is it
for real? Does it really work?"
"Neuromonics Tinnitus Treatment is a relatively new treatment
for tinnitus. Developed by audiologist, Paul Davis, Ph.D. of
Australia to reduce the disturbing effects of tinnitus,
Neuromonics opened for business in Australia in 2001. It came to the USA in late 2005. More and more tinnitus
treatment centers are adding it to their arsenal of tinnitus
treatments.
You see, no one tinnitus treatment protocol works for
everyone. Some tinnitus treatment protocols work for some
people and not for others depending on the kind and cause of
their tinnitus. Neuromonics is the same—it works for some people but not for all...."
This is the beginning of my article on Neuromonics. It explains
what Neuromonics is, what you need to know about it, how
well it works and whether it might work for you.
Read the rest
of this article here.
===============================================
5. Effective Coping Strategies
===============================================
How Do I Best Cope with My Spouse Who Won't Do
Anything About His Hearing Loss?
by Neil Bauman, Ph.D.
A frustrated wife asked: "Can you please offer suggestions on
how to live peacefully with a hearing impaired spouse who
refuses hearing aids and other assistance?
My husband recognizes he has a "mild to moderate" hearing
loss however, he does not admit to its severity, or how it
affects his day to day life. He did obtain hearing aids on a one
month trial and "didn't like them". He only wore them for a few
hours on two or three days and refused to attend any of the
classes offered by the hearing aid dispenser on how to use
and adjust to them.
I have become his "hearing aid" both in and out of our home.
At home, even though our television has closed captions, he
continually interrupts my TV viewing, or attempts at reading to
ask, "What did they say". He does have remote earphones
for TV viewing, but prefers not to wear them.
For me to talk with him, I must stand in front of him to get his
attention and then speak slowly and loudly. My friends and
coworkers complain that my speech has become very loud.
When we are out of the house, i.e. his recent medical
appointment, he only heard those looking directly at him. The
remainder of the time, I repeated the questions for him. We
have not attended a movie in years, and rarely dine out or
attend social events due to his problem.
I do not think he is going to change his behavior patterns.
What can I do to make our mutual lives less stressful?"
You are in a tough position. You can continue to put yourself
out and be his "hearing aid" so he doesn't get too upset about
his hearing loss. He will then be reasonably happy. This will
bring short-term peace. However, you will have to give up your
own interests to be his "ears". This will cause you to become
resentful and angry at him, and that will not be good for your
marriage. In other words, you can have peace in the short
term, but this will ultimately erupt in war.
The better way to handle this situation is to exhibit "tough love"
(which will likely result in some warfare now), but ultimately, it
will bring long-term peace and harmony as needed changes
take place.
Let me explain what I mean. Currently, your husband is still
largely in denial. You cannot effectively help people when they
are in denial because they don't believe there is a problem in
the first place, so why should they address it?
Your strategy is to keep the peace by being an enabler (being
his hearing aid as you said). This strategy just helps him keep
on denying that his hearing loss is a real problem.
The only way he is going to get out of denial and accept that
his hearing loss is a real problem is if you don't be his "ears"
anymore. You need to let him make his own hearing mistakes.
This will eventually bring home to him that he really does have
a hearing problem, and that it is up to him to solve it.
Your husband gave his hearing aids a very cursory trial (a few
hours over 2 or 3 days is not a fair trial) and announced they
didn't work for him. This is part of the normal reaction that
those in denial make. If they don't really have a hearing
problem, then of course they don't need hearing aids. (I'll bet
he only tried them at your insistence—not of his own free will.)
You see, now is not the right time for your husband to be
trying out hearing aids even though he really does need them
now. A person is ready to try out hearing aids only after he
reaches the acceptance stage in the process of grieving for
his hearing loss, not when he is still in denial. Your husband is
just not psychologically ready at this point to wear hearing
aids.
In any case, when your husband eventually realizes he needs
hearing aids, he also needs to realize that it will take his brain
up to 90 days to adjust to wearing hearing aids. It does not
happen overnight.
Furthermore, I'll bet your husband went about it all wrong in
learning to wear his hearing aids. He likely wore them in loud
places right at the start, announced he couldn't hear a thing
and yanked them out. The proper way to learn to wear hearing
aids is slowly. You start out with an hour or so the first day and
add half an hour a day to that on each successive day. At the
same time, to begin with, you only wear them in quiet
situations, then in slightly noisier places and finally in noisy
situations after you are reasonably adjusted to wearing
them.
Now, what can you do to help your husband? First, you have
to stop being his "ears". You need to let him "hear" on his own
most of the time. There are situations when it is ok to jump in—for example, in emergencies—but when you do it all the time
he will never change because he doesn't have to face up to
the problems his hearing loss is causing.
When he interrupts you to ask, "What did they say?" when he
is watching the TV, all you have to say is "read the captions"
and go back to whatever you were doing. He can read the
captions as well as you can.
When you want to talk to him, you need to practice good
hearing loss coping strategies. You say, "For me to talk with
him, I must stand in front of him to get his attention, and then
speak slowly and loudly."
Believe it or not, this is proper procedure when talking to hard
of hearing people. First you need to get close to him because
the volume of sound drops off rapidly with increasing
distance. Second, you need to get his attention. Wait until he
is looking at you before you say a word. Just doing these
two things will save you a lot of repeats ,and reduce frustration
in both of you.
When you are with him at the doctor's office, if he misses
something, instead of repeating it for him, say to the medical
staff, "Look directly at him when you are talking to him so he
can hear you". Do this as often as you have to, and eventually
they will learn.
I sense that you are missing dining out and attending various
social functions since your husband can't hear in such
situations. There are a number of good coping strategies to
use in such places—but your husband has to be willing to do them—and he won't do them while he is still in the denial stage.
You'll have to wait until he reaches the acceptance stage.
When he is ready, dining, even in noisier restaurants, can work
very well if he uses the right assistive devices. For example, I
use a PockeTalker personal amplifier and lapel microphone. I
just clip the microphone on my wife and put ear buds in my
ears (or use my hearing aids and a neckloop instead of the
ear buds) and hear her wonderfully well. He could do the
same, and you could chat again without a lot of hassle.
For social situations he could also do what I have found
effective for myself. In such situations I use a super-directional handheld microphone plugged into my PockeTalker, and again use either my ear buds or hearing
aids and neckloop. This way, I hear very well one-to-one as I
walk around and chat.
Your husband will not change his behavior patterns until you
quit acting as his ears. Thus, the first thing you have to do is
quit your "ear" job. Tell him that he is going to have to hear for
himself from now on. It shouldn't take him too long to realize
that he needs help. I know it is hard to refuse to be his "ears",
but that is what you have to do—"tough love," remember.
Doing this is not going to make your mutual lives less
stressful in the short term. You have to let it get worse so he
moves out of the denial stage and accepts his hearing loss.
He has to accept that it is his loss and thus he has to be a
big part of the solution. There is going to be a bit of "rough
sledding" before he accepts responsibility for his own
hearing. Statistics show that the typical person takes an
average of 7 years from the time he acquires a hearing loss
until he is willing to do something about it.
Typically, people work though the 5 stages of grief as they
learn to deal with their hearing loss. Denial is the first stage.
After the denial stage comes the anger stage. Be prepared
for this anger when you do not help him. You are the closest
person to him, so unfortunately, you will bear the brunt of his
anger. Don't take it too personally.
This is not to say that you don't love and support him. You can
largely do this, not by nagging, but by suggesting a good way
to cope in any given situation—for example, more closer so
you can hear better, turn on the light so you can see what they
are saying, mute the TV (or other background noise) when you
want to talk so you'll be able to hear better, etc.
Once he gets through the denial and anger stages, (I'm
skipping the bargaining stage here) then comes the
depression stage. This is where he will essentially give up
acting like a hearing person. This sets the stage for his
becoming the best hard of hearing person he can be. As he
progresses through the depression stage, get ready for good
things to happen as he starts to accept his hearing loss.
It is in the acceptance stage that he will become willing to do
what he needs to do in order to hear as well as possible. Now,
at last, he will be willing to try hearing aids, or use a an
assistive device such as the PockeTalker, or read the closed
captions on the TV. This all takes time. You can't rush it. Each
person progresses through the grieving process in his own
time. (It often depends on how "stubborn" he is. Some of us
men can be pretty stubborn, you know.)
The good news is that when he progresses to the acceptance
stage, you will find it reasonably smooth sailing again, but to
reach this point, you will have times of "heavy seas".
Encourage yourself that this too will pass. You just need to
persevere. It won't be easy, but it will be worth it!
You (and he) would do well to read my book, "Grieving for
Your Hearing Loss—the Rocky Road from Denial to
Acceptance". This short book has helped many work though their grief
due to their hearing losses.
Also, my latest book, "Keys to Successfully Living with Your
Hearing Loss" covers the essential keys needed to successfully adjust
to living as a hard of hearing person.
When he is ready, your husband may be interested in using a
PockeTalker with a
lapel microphone
and/or a
super-directional microphone.
They really do work for me. They should also work well for
him also.
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===============================================
6. Information on Hearing Aids, Cochlear Implants
and/or
Assistive Devices
===============================================
T-coils Have Been Around Since WHEN?
by Neil Bauman, Ph.D.
A lot of people think that t-coils and loop systems are a
relatively new invention. I'll bet you'll never guess just how
long t-coils have been available in hearing aids.
If you're like most people, you probably guessed some time
in the 1970s or 1980s. If you guessed that, you'd be way off
base. In actual fact, the first hearing aid to have a t-coil was a
vacuum tube table model that Tel-Audio came out with back in
1936!
Two years later, in 1938, Multitone of Great Britain produced
their model VPM (vest-pocket model)—the first wearable
hearing aid with a t-coil. Here in the USA, it took until 1946
before RadioEar produced their Multipower "Phonemaster",
the first American hearing aid with a t-coil. Since the 1950s, t-coils have been standard features on a number of hearing
aids.
As some of you may know, I am the owner of the largest on-line
hearing aid museum in the world.
Recently the museum acquired a Sonotone Model 200
transistorized body-style hearing aid made in 1956 with a built-in t-coil. That is nothing unique. But what was unique is that it
came with a small loop pad that you could hook up to your TV
and so listen to your TV via this loop pad. (I'm not aware of
any other of these loop pads still in existence!)
You hooked the loop pad to your TV by simply clipping two
alligator clips to the TV's speaker wires. Then you set the loop
pad down beside you and placed the body of your hearing aid
on the loop pad and turned the mic/t-coil switch to the t-coil
position.
If you'd like to
see this
Sonotone 200 hearing aid set on the loop pad,
it is shown on the
11th picture down. Cool isn't it? (For more information on this
loop pad, click on the "Sonotone Miniature Loop Pad" link
beside this picture.)
Compare this antique loop pad to a
modern
loop pad that is in use today. (Scroll down to the 4th picture.)
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HEARING LOSS HELP E-zine
Neil Bauman, Publisher
Center for Hearing Loss Help
49 Piston Court
Stewartstown, PA 17363 USA
Phone: (717) 993-8555
Fax (717) 993-6661
http://www.hearinglosshelp.com
neil@hearinglosshelp.com
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