August 28, 2008 Issue
HEARING
LOSS HELP E-zine
"The premier e-zine for people with hearing loss"
Volume 3, Number 7 August
28, 2008
Publisher: Neil Bauman
neil@hearinglosshelp.com
http://www.hearinglosshelp.com
Copyright Center for Hearing Loss Help 2008
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"Hearing loss may change your life,
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rewarding and fulfilling
because you have a hearing loss."
— Neil Bauman, Ph.D.
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================================================== In this issue ==================================================
1. News Items
2. Beware of (Ototoxic) Drugs That Can Damage Your Ears
3. Tinnitus
4. Answers to Your Questions
5. Effective Coping Strategies
6. Information on Hearing Aids, Cochlear Implants and/or Assistive Devices
===============================================
1. News Items
===============================================
Hearing Loss Much More Common Than Previously Thought
by Neil Bauman, Ph.D.
A recent study revealed that the incidence of hearing loss in
the USA has been grossly under-reported. Four or Five years
ago when everyone was quoting 28 million hard of hearing
people in the USA, I proclaimed that the true incidence of
hearing loss was about double that (56 million). As a result, I
caught flak from a hearing loss organization for not being a
"team player" and reporting the "accepted" figures.
Now I have been vindicated. In a study done by Dr. Yuri
Agrawal and colleagues, of Johns Hopkins Hospital,
Baltimore, MD, and reported in the July 28 issue of the
Archives of Internal Medicine, an estimated 55 million
Americans have high-frequency hearing loss.
Here's more details. The results were based on hearing tests
"administered to 5,742 Americans age 20 to 69 from 1999 to
2004. Researchers assessed hearing loss of 25 dB or higher
at speech frequencies (0.5, 1, 2 and 4 kilohertz) and at high
frequencies (3, 4 and 6 kilohertz)." (1)
Sixteen percent "(an estimated 29 million) American adults
had speech frequency hearing loss in one (8.9%) or both ears
(7.3%). Thirty-one percent of participants (equivalent to an
estimated 55 million Americans) had high-frequency hearing
loss [12% in one ear and 19% in both]. High frequency
hearing loss was found in participants age 20 to 29 (8.5%
prevalence) and in those age 30 to 39 (17% prevalence)."
Suddenly the accepted figure for hard of hearing Americans
has jumped from 31.5 million (today's previously accepted
figures) to 55 million. Now notice something important. This
study just included people ages 20 to 69. What about the
millions of hard of hearing people younger than 20, and older
than 69? Obviously the true figure is much higher still.
Fortunately, Dave Albert, MD noticed this and explained, "I
want to clarify some confusion about the Johns Hopkins article
in the Archives of Internal Medicine on the demographics of
hearing loss.
(1) They only looked at people age 20 to 69
(2) People 70 and over have an increasing incidence of high
frequency hearing loss.
(3) Therefore, the real number of people in the US with
significant hearing loss is significantly higher than the
55 million they estimate in the article.
A back of the envelope estimate would be take the 55 million
(ages 20-69), add 1 million for ages 0-19 and 10 million (at
least) for ages 70 to death and you will have 66 million. It is
probably closer to 70 million but I am being conservative
(which I am not very often)."
Notice that, now we have jumped from 31.5 million to 70
million—more than double the previously accepted figures. I
think we are finally getting much closer to the truth. There is no
doubt about it. Hearing loss is at epidemic proportions in the
US today! The US population is just shy of 305 million people.
This means that 23% of the population—almost 1 in every 4
people—has a significant hearing loss according to this study.
I think it's time we get serious about protecting our precious
hearing!
(1)
The Hearing Review July 31, 2008.
—o—o—o—o—o—o—o—o—o—o—o—
LVAS and Genes—Have They Found Them All?
by Neil Bauman, Ph.D.
More and more children are being found to have a hearing
loss due to what is called Large (or Enlarged) Vestibular
Aqueduct Syndrome (abbreviated to either LVAS or EVAS).
LVAS is passed on from generation to generation by
recessive genes. That much researchers know. How many
genes are involved in LVAS? No one knows.
So far researchers have now traced the gene thought to be
responsible for LVAS to a location on chromosome 7q31 in a
region that overlaps the area containing the gene responsible
for Pendred syndrome (PDS).
As I wrote back in 2002, "This suggests that different
mutations in the PDS gene can cause a variety of related
conditions ranging from nonsyndromic recessive hearing loss
(NSRHL) with enlarged vestibular aqueducts (basically LVAS)
to the severe Mondini deformity and Pendred Syndrome.
Some people with Pendred Syndrome have fluctuating
hearing loss similar to that observed in people with LVAS.
Another theory is that a separate gene responsible for LVAS
may exist close to the Pendred gene, and that mutations in
both are required for full Pendred syndrome, whereas a
mutation in only one of these genes may result in hearing loss
associated with a variety of cochlear abnormalities." (1)
The truth is, many more genes may be involved in LVAS than
the one or two related to Pendred syndrome that have been discovered so far.
Did you know that of the approximately 20,000 genes in the
human body, "more than 4,500 genes participate in the
development and maintenance of the human inner ear, making
it the most genetically complex organ in the human body."
Researchers also know that hundreds of genes are
involved in hereditary hearing loss, leading to syndromes such
as Waardenberg, Usher and Pendred." (2)
From the above, it is obvious that researchers still have a long
ways to go in order to identify all the genes that go into making
up LVAS. I say this because hearing loss (and balance
problems) do not seem to correlate with the size of the
vestibular aqueducts or anything else so far. In fact, some
people don't have an hearing loss at all in an ear with LVAS.
Thus some critical information is still missing.
Until then, and with so many unknown variables related to
LVAS, it will continue to be very difficult to effectively
diagnose and manage LVAS.
(1) Large Vestibular Aqueduct Syndrome (LVAS) by Neil
Bauman, 2002.
(2) In "Advance for Audiologists" (July 22, 2008) by Jess
Dancer, Ed. D.
**************************************************
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**************************************************
===============================================
2. Beware of (Ototoxic) Drugs That Can Damage Your Ears
===============================================
Why Aren't Doctors Warning About the Ototoxic Side Effects of Drugs?
by Neil Bauman, Ph.D.
A lady wrote: "Someone just gave me a copy of your book,
Ototoxic Drugs Exposed, and now I know why I lost my high
frequency hearing while I was in my 40s. When you are very
verbal and love music and talking, this is a pretty traumatic
thing.
Starting in my 30s, I took Prozac [Fluoxetine] for 10 years,
plus I get migraines and have used Imitrex [Sumatriptan]
regularly since it came out. Finally, subsequent to a year or
two off of Prozac, I took Wellbutrin [Bupropion] on and off for
two years.
It ticks me off that, about 6 years ago, when I went to an ENT
because I thought allergies were "stuffing" my hearing, they
tested my hearing and determined that I had significant high-frequency hearing loss. When I asked why, because I thought
I always took good care of my ears and didn't listen to loud
music, etc., they just answered "sometimes we just don't know
why these things happen." They didn't give me a list of
products and ask, "Have you taken any of these in the past?
Are you on any of these drugs now?"
Shouldn't an ENT be on the lookout for that kind of thing? In
the past six years, I could have been "not" taking Wellbutrin
and maybe avoiding Imitrex a little more, and preserving more
of my hearing.
Thanks again for your invaluable book. Talk about a 'light bulb'
moment!"
Yes, doctors should be on the lookout for drug damage in
their patients. Unfortunately, many don't seem to be doing it.
I think there are two reasons doctors don't tell you about the
ototoxic side effects of drugs. First, they don't believe that
drugs are the culprit—they buy into all the pharmaceutical hype
that drugs are safe when that is just not true. The FDA is on
record as saying that "every drug has adverse side effects" and some of those side effects damage ears.
Second, since doctors are the ones that prescribe the drugs
in the first place, they don't want to admit that the very drugs
they are prescribing are hurting their patients. By doing so,
they'd obviously open themselves up to lawsuits.
Thus, it seems to be the rare doctor that knows much about
ototoxic drugs and advises his patients accordingly.
Although many ENTs seem to be downplaying the ototoxic
effects of drugs, there is some good news out there. More
and more audiologists are regularly asking their new patients
about the drugs they are taking, then consult "Ototoxic Drugs
Exposed" to see whether their ear problems could be
explained by the adverse side effects of the drugs they are
taking.
In any case, I am a strong advocate of taking control of your
own health and not relying on your doctor. This means
learning about the harmful side effects of drugs and how they
can affect your ears.
You can learn about such drugs by reading my
book "Ototoxic Drugs Exposed". This book contains
information on the ototoxicity of 763 drugs known to damage ears (and
information on 148 ototoxic chemicals too).
**************************************************
Having trouble hearing on your cell phone because of lack of volume or
interference?
If you wear hearing aids that have t-coils in them, try the dual T-Links and
hear beautiful, clear, interference-free sounds in both ears!
Click here to learn more.
**************************************************
===============================================
3. Answers to Your Questions
===============================================
If you have a question, or if something has been puzzling you
concerning your ears, email it to
mailto:neil@hearinglosshelp.com
and put "e-zine question" as the subject. Suitable questions will be answered here.
Hearing Your Own Voice on Cell Phones
by Neil Bauman, Ph.D.
A human services specialist contacted me and explained: "I
was recently contacted by a woman interested in a neckloop
for her cell phone (via t-coil setting). She finally tried one out,
and didn't like the fact that she couldn't hear herself speaking.
She has a hearing aid in one ear, and a cochlear implant (CI)
in the other. Do you have any suggestions on how to hook up
a system where she'd be able to hear herself as well as have
access to the t-coil amplification? I've racked my brain and
am out of ideas! Any help you can offer would be greatly
appreciated."
Unlike land line phones, cell phones don't have "side tone"
which allows you to hear your own voice in the receiver. If you
have normal hearing, when using a cell phone, you hear your
own voice via your other ear.
However, when you want to use a cell phone with a neckloop
or T-links, the hearing aid's (and/or cochlear implant's)
microphones are turned off. Thus you can no longer hear
yourself talk. As a result, you don't know if you are talking too
loud or whispering.
There are two ways to address this problem (apart from
designing cell phones with side tone—but that would be too
easy).
The simplest/easiest solution as I see it is to program her
hearing aid (and/or CI) to the "MT" position (both microphone
and t-coil on at the same time) instead of just the "T" position.
Then she could hear her own voice as the microphone in her
hearing aid (and/or CI) would pick her voice up and amplify it in that ear.
The other solution involves more technology—to create a
pseudo-side tone. Here is one way she could do it using an
independent system in tandem with the phone system.
For this to work, she'd need a PockeTalker (or other personal
amplifier), a lapel microphone and a second neckloop or
Music Links.
In practice, she would turn the PockeTalker on, place both
neckloops around her neck and clip the lapel microphone to
her collar. With her hearing aid and cochlear implant in their t-coil modes, she'd hear her cell phone via the one neckloop/T-links, and hear her own voice via the second neckloop/Music
Links via the PockeTalker.
Most hard of hearing people just learn how much vocal effort it
takes to talk at sufficient volume that the person on the other
end can hear them, and yet not so loud they are blasting
everyone within earshot. If this doesn't work for her, then one
of the above two solutions should.
You can get information here on a
PockeTalker, neckloop and lapel
microphone here and
information on the
T-Links and Music Links
here.
—o—o—o—o—o—o—o—o—o—o—o—
Charles Bonnet Syndrome
by Neil Bauman, Ph.D.
A lady wrote: "Strange things are happening now with my
eyesight. I used to get a head-size black spot in front of one
eye. Recently I got a large white one. On Sunday, when I took
a bath, it had changed suddenly to a real face. I opened and
closed my eyes again and again, it did not disappear. I just
laughed at it. What else could I do? I did not let it frighten me."
You have Charles Bonnet Syndrome. This is when you see
things that are not there, especially when you have vision
problems like you have. It is analogous to Musical Ear
Syndrome—which is where you have hearing loss and hear
things (music, voices) that are not there.
It's nothing to be frightened about, especially once you know
what is happening. Some people see the wall of their room
disappear and be replaced by a field of sheep, or a children's
playground and the kids playing there.
Actually, a high proportion of elderly people with certain vision
problems "see" such things, (around 30%) but seldom talk
about them for fear of being thought crazy. (This is exactly the
same as those who hear phantom music and don't want to talk
about their phantom sounds for fear of being thought crazy
too!)
Some people even have both conditions at the same time.
I've written a book on Musical Ear Syndrome so people don't
have to needlessly worry about the phantom sounds they are
hearing. In it there is even a chapter on Charles Bonnet
Syndrome.
Learn more about
Musical Ear Syndrome here,
or get my book
"Phantom Voices, Ethereal Music & Other
Spooky Sounds" here.
===============================================
4. Tinnitus
===============================================
Causes of Tinnitus
by Neil Bauman, Ph.D.
A lady asked: "What causes ringing in both ears?"
There are a good number of causes of ringing in the ears—what we call tinnitus. Here are some of them.
- Exposing your ears to loud sounds
- Taking any of the 450 drugs that can cause tinnitus
- Hearing loss, especially sudden hearing loss
- Exposing your ears to various chemicals and heavy metals
- Eating certain "foods" such as alcohol, nicotine, caffeine,
monosodium glutamate (MSG) and some spices
- Head trauma—blow to the head, head injury
- Whiplash, neck injuries
- Barotrauma (sudden pressure changes)
- Certain illnesses
- Allergies
- Colds/sinus infections
- Viral ear infections
- Middle ear infections (otitis media) or other ear problems
- Surgery
- Acoustic neuromas
- Meniere's Disease
- Otosclerosis
- Diabetes
- Stress, anxiety, depression
- Extreme fatigue
In addition to the above, there are various somatic (body)
kinds of tinnitus. Somatic tinnitus can result from such things
as moving your head/neck, bending over, clenching your
teeth, TMJ, moving your eyes, pulsatile tinnitus—tinnitus in
unison with each heart beat and related to vascular causes.
You can also get tinnitus from ear wax, or if the stapedius or
tensor tympani muscle "spasms" in your middle ears.
The first three in the above list are probably the most common
causes of ringing tinnitus.
I always like to find out what happened just before the tinnitus
started. Often that gives a clue as to the cause of the tinnitus.
For example, if you begin a new medication and 3 days later
you get loud tinnitus, that could be the cause, or perhaps you
are under extraordinary stress—then that could be the cause,
etc.
—o—o—o—o—o—o—o—o—o—o—o—
Three Tinnitus Stories and What You Can Learn from Them
by Neil Bauman, Ph.D.
Below are the tinnitus stories of three different people. (Note:
each of them has graciously given me permission to share
their stories in hopes of helping others. I have changed their
names to protect their privacy.)
Notice how each person's tinnitus has a somewhat different
cause. Also notice how each person has learned one or two
essential things they can do to help control their tinnitus. When
you know what affects your tinnitus, you can take appropriate
steps in order to help keep your tinnitus under control too.
Perhaps your tinnitus can be helped using some of their
"tricks".
—o—o—o—o—o—o—o—o—o—o—o—
Tinnitus and Tinnitus Maskers—One Person's Story
by Neil Bauman, Ph.D.
In some people, the onset of their tinnitus can be slow and
gradual—but just as annoying as if it came on suddenly. This is
what happened with "Jim." Here is his story.
"My tinnitus started rather slowly eight months ago. I started to
realize something just didn't feel right in my head. I don't
remember hearing a noise at that time, but everyday living was
painful. I did a lot of toying with, and holding, my head,
especially in the evening when I was sitting watching TV. My
wife says I started to make painful little sighs at times when I
didn't realize it, and different facial expressions like I was in
pain.
Then my ears started to make little ringing sounds during quiet
times. I noticed nothing when I stayed busy. As the ringing
progressed, it became harder to concentrate on things. I
seemed to want to stay busy going from one project to
another. I would take shorts walking breaks at work while
others were on a smoke break.
When I was at work, or when my mind was busy, I noticed
very little ringing myself, but I noticed my wife would be
watching me from time to time. (That is never a good sign.)
Then things started to change.
The ringing started to get louder, and it appeared to be
coming from my right ear. I also felt what I call a heavy feeling
in my right ear. I started to hear the ringing during the day, but
in the evening it was worse, sometimes to the point I started
to go to bed early.
As things progressed, I started to get unsteady on my feet
when I was exhausted. I had a number of near falls, then 2
falls outside. I ended up in a sling for 2 weeks after one fall. I
felt tipsy mostly when I was working hard outside all day.
Along with that came a steady ringing. I couldn't tell where it
was coming from, but described it as a head ringing. Every
week or so, it would suddenly change to a lower pitch for
about 5 seconds.
By that time I was hitting the doctor circuit with CT scans and
hearing tests. I was told by 2 different doctors I had
something called tinnitus and hearing loss, but not bad
enough for hearing aids.
Their only suggestion was to turn on a fan to make some
noise. My answer was, "Maybe that might help some people,
but I would have to turn on a lawnmower to make this noise go
away!" I had no idea what tinnitus was, but knew it was
whipping my butt, and no one but my wife could understand all
the problems it was causing me.
I quit telling friends and co-workers about the ringing because
they all "had it too" or knew of someone who did, and they just
got used to it. That was tough for me to handle. It wasn't until
my family doctor sent me to a second Neurologist that things
started to look up. He realized this was not a little bit of ringing
that "we all sometimes have", but that this was whipping my
butt. He called the Beltone office while I was there and gave
me a script for something to try to see if I got any relief.
He said it was a product just out and would be available in 2
weeks. I went to Beltone and had another hearing test. One of
the things I was always wanting is for someone else to be
able to hear what I was hearing so they would understand. I
think my wife got to hear close to what I was hearing during
this test, and she describes it like the emergency broadcast
tone on the TV.
Beltone had a BTE hearing aid that was both a hearing aid and
also a tinnitus masker. If I have it correct, my ringing is at a
certain frequency. The masker produces noise at another
frequency that is more pleasant to listen to and tends to
cancel out the ringing.
My family noticed right off the bat I was better. I could sit and
carry on a conversation without needing to get up and move
around. My life was not so painful and I could get some
peace.
Being the "manly" man that I am at 57 I figured I can't wear
hearing aids, or I won't wear them at work, but just at home.
However, they worked so well I put them on in the morning
and they are the last thing I take off at night.
When bad, I would consider my ringing to be an 7 (out of 10)
and maybe would rate it higher because with the ringing
comes a balance problem. Before the tinnitus masker, I took
some Hydrocodone to try to get relief. I describe that
experience as the ringing is still there, but it just doesn't make
me as mad.
I found this group [the SayWhatClub] when I was really feeling
sorry for myself. I found others that are going through the
same thing I am, and see my problems are a drop in the
bucket compared to some others. I also realize these things
can happen to me and not always just to someone else. My
tinnitus has taught me patience and to be more understanding
of others. I had forgotten that and needed to be reminded
again."
From "Jim" we can learn a couple of important things to help
in dealing with tinnitus. First, people with tinnitus need
emotional support (even though men often deny this). One of
the best support (and friendship) groups around is an on-line
(email) support group called the
SayWhat Club. I've been a member of the SWC for
12 years now. Met my wife there too!
Second, tinnitus masking works for some people. It is a viable
option you may want to check out. If you have a hearing loss,
then a combined hearing aid/tinnitus masker may be your
solution. Ask your audiologist about this. There are several
brands of hearing aid/tinnitus maskers available.
Also, a good number of people find that just wearing their
hearing aids makes their tinnitus disappear or fade into the
background—at least while they are wearing their hearing aids.
However, their tinnitus often comes back when they take their
aids off at night, but at least they get relief during the day when
they are awake.
—o—o—o—o—o—o—o—o—o—o—o—
Sudden Hearing Loss and Tinnitus
by Neil Bauman, Ph.D.
This is the second of three tinnitus stories. In contrast to
"Jim's" gradual drift into tinnitus, "Audrey" was suddenly
plunged into it. Here is her story.
"I developed tinnitus very suddenly in 1993 when I was 38
years old. Before that day, I had excellent hearing and
balance. I was in graduate school at the time, and just before
class, my Professor asked me if I felt OK. She said I didn't
look good—but agreed with me that it might just be the usual
end-of-the-semester exhaustion typical of a grad student.
At 11:10 while I was sitting in class, I suddenly got a little
single tone ringing in my right ear. Over the next 10 seconds,
it was as if a wave rolled over my ear and killed it. In that 10
second span, I lost 100% of my hearing in that ear, and the
noises got VERY loud and included 3 or 4 different tones
simultaneously. I also became a little dizzy. The dizziness
became worse all day and I eventually lost 100% of my
balance on the right side, too.
My right inner ear just "up and died" that day. So, I suddenly
got all 3 problems—deafness, tinnitus, and balance loss.
As the otologist who treated me said, I was the "classic case"
of Sudden Hearing Loss Syndrome—the sudden death of the
inner ear for no apparent reason—and for which there is no
proven treatment. In my case, we suspect that an otherwise
asymptomatic virus wiped it out.
Over the next year or so, the tinnitus and the balance
problems improved a little, but my hearing is still a100% loss.
Fortunately, my left ear remained normal.
The sudden loss of hearing in one ear was the easiest thing
for me to adapt to. The balance loss and the tinnitus were
tougher. Fortunately I had a great otologist whom I trusted.
She advised me to figure out (through trial and error) which
foods and activities made my tinnitus worse and then make
my lifestyle decisions accordingly. She also emphasized
being tough and simply not giving in to the temptation to let it
make me an invalid.
I discovered that caffeine is a huge "no no" for me—but that's
the only food that I avoid because of my tinnitus. Stress,
sound, and wind are the other big stimulators. For example,
after a good night's sleep, I will wake up with very little tinnitus
(maybe a level 2 out of 10). Then I get up and go to the
bathroom, and when I flush the toilet—ZING!—the tinnitus "turns
on" and jump up to a 5 or 6. It's at its worst after I have been
outside on a windy day. I'm not sure why that is, but the wind
increases my tinnitus dramatically.
Over the years, I have coped well by learning how to focus my
attention on what I want to hear while simultaneously not
focusing on the tinnitus I don't want to hear. I still "hear" it. I
just accept it as background noise, and live life with a
permanent sound track. It's kind of like living in a busy
restaurant—in which there is always background noise that is
sometimes very loud—but I choose to focus on my
companions and my food, not on the background racket.
I decided to simply accept the noise as a part of my way of
experiencing the world and got used to it—though I do try to
avoid things that stimulate it, and I use relaxation techniques to
try to lower it a bit when it gets really loud.
I have more trouble whenever I don't get enough sleep. I also
limit my use of NSAIDs as they dramatically increase my
tinnitus. In addition, as soon as I think about my tinnitus, it
increases noticeably."
"Audrey's" story reveals two more great coping strategies
where tinnitus is concerned. First, notice that she learned to
accept her tinnitus—not fight it. She, as much as is humanly
possible, put it out of her mind. As a result, her limbic
(emotional) system didn't "flag" her tinnitus and make it even
worse. Dwelling on your tinnitus almost always makes it worse,
so follow "Audrey's" example.
Second, she learned which lifestyle changes affected her
tinnitus. Thus she could prevent her tinnitus from "taking over"
by avoiding those things—such as caffeine and NSAIDs (non-steroidal anti-inflammatory drugs) for two. She also learned
that stress was a big factor (and is with many people with
tinnitus), so by limiting her stress, she also effectively was
able to control her tinnitus to some degree.
—o—o—o—o—o—o—o—o—o—o—o—
Stress and Anger Make Tinnitus Worse
by Neil Bauman, Ph.D.
This is the third of three tinnitus stories, illustrating different
effective coping mechanisms used by each of these three
people. No one thing works for everyone—so you have to see
which coping strategies work the best for you in reducing your
tinnitus.
Here is "Sandra's" story. She explained, "My tinnitus is quite
loud on the average—around 6 or 7 (out of 10). Some days it's
at a 8 or 9, and will last at that loudness for a couple of days.
My tinnitus was triggered 10 hours after getting a flu shot. I
truly believe it was the mercury that is used in it that did it. I
have had it ever since. For weeks after the shot it was at a 10
and I thought I would lose my mind. Fortunately, after a few
weeks it started to lower to a 7 or 8.
I tried to function and tried many methods to lower it further.
For me, the tranquilizer Xanax [Alprazolam] helped
tremendously. I take it still and my tinnitus is down to 5-6 most
of the time. But there are certain things that will make it to go
higher.
For me stress and anger are biggies. When I first get up it is
the loudest. In fact some mornings I feel this humming feeling
in my body right after I wake. Then the noise escalates
immediately. When I am not stressed that does not happen at
all. I will just get a 5 level upon awakening, and then increase
to a 6 or 7 as I get busy. But on stressed days, only taking
Xanax helps.
When I need to get something off my chest as in anger it gets
very loud. It will not diminish unless I get rid of the anger or
hurt. But it had not ever gone down below a 5 or 6 in the 4
years. that I have had it.
What helps the most is if I take a Xanax and change my
environment by going out, or visiting my daughter or
grandchildren. My mind is switched from my previous thoughts
to feelings of pleasure being with family. Hence the noise
comes down a peg or two. I have got myself adjusted to the
noise level of 5-7, but if it goes above that I begin to get
scared, and that makes it even worse. It takes a lot of coping
and family support to get through the "loud" days.
Certain drugs also greatly affect my tinnitus. For example,
Pepto Bismol (the pink stuff) can increase it two-fold. [Pepto
Bismol has the same basic salicylate ingredient in it that is in
Aspirin and related products.] Today I had to take the Pepto
Bismol and sure enough the ringing is getting louder by the
hour. By tomorrow it will be full blown 9-10, and I'm not looking
forward to it. But I had to take it to help my stomach. Then by
the next day it will start to go back to around a 6 or 7.
There are some things that make my tinnitus worse besides
stress and drugs. Salt, too much sugar, chemicals, cleaning
agents, bug killers, if the TV is too loud for too long, if I am
overtired and my mind is thinking a lot to name a few.
My tinnitus drops to a 5 when I occupy my mind on something
pleasant. Other things that help my tinnitus is not harboring
resentment, and getting enough sleep."
From "Sandra's" story we learn how closely tinnitus can be
associated with our emotional and mental states, and how
important it is for us to "keep an even keel" and not harbor
anger and resentment, or get stressed out over things.
Deliberately changing the environment and thinking "good"
thoughts works for her. You might be surprised how well it can
work for you too.
I don't advocate taking drugs such as Xanax (Alprazolam)
because this drug belongs to the Benzodiazepine class and is
dependence-forming. (Trying to get off such drugs can make
your tinnitus "awful" so it is better never to get hooked in the
first place.) However, taking a anti-depressant occasionally
when you find it most difficult to cope with your tinnitus is not
all bad as "Sandra" found.
Also, observe which drugs, chemicals, cleaners, etc.
aggravate your tinnitus and avoid those things. There are ever
so many tinnitus triggers, and it is up to you to find which ones
make your own tinnitus worse.
If you are interested in learning more about tinnitus and the
many things you can do to help bring it under your control, you would do well to
read my book, "When
Your Ears Ring! Cope With Your Tinnitus—Here's How".
**************************************************
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===============================================
5. Effective Coping Strategies
===============================================
Use the International Phonetic Alphabet—It's an Effective Coping Strategy
by Neil Bauman, Ph.D.
I have just written a new article called "The International
Phonetic Alphabet—A Boon to Hard of Hearing People (If
You Know and Use It)".
This article begins, "Among most hard of hearing people, the
International Phonetic Alphabet seems to be a deep, dark
secret. This should not be, as the International Phonetic
Alphabet is a most useful communicating aid."
The article goes on to teach you why the International Phonetic Alphabet is such
a great communication aid for us (hard of hearing people), and how to
effectively use it.
Click
here to read the rest of this article.
After you've read it, don't stop there, put what you have
learned into daily use.
===============================================
6. Information on Hearing Aids, Cochlear Implants
and/or Assistive Devices
===============================================
Bluetooth and other Adaptations for Landline Phones
by Neil Bauman, Ph.D.
A lady wrote: "You have been the greatest help in the past and
I come to you once again with a question. With your help, I am
currently using the Bluetooth MaxIT neckloop with great
success on my cell phone. I also own a personal Williams
Sound Hearing Helper [FM system] given to me when I
retired. It's great for personal conversations in the car and of
course in some group settings.
Here's my question. I am currently looking for part time work,
but most require juggling telephone calls on business phones.
If their phones are not Bluetooth compatible (in which I would
hope the MaxIT could be used), what adaptations can be made
so I can hear with both hearing aid t-coils?"
You have several options available to you. Here are four
solutions—two use your MaxIT Bluetooth neckloop, and two
use a standard neckloop (and both of your t-coils of course).
Solution 1: There is the odd Bluetooth land line phone. An
example is the Uniden ELBT595 phone. If I understand the
spec sheets correctly, you can simply use your MaxIT with it.
This phone is about $165.00. If you are interested, use
PriceGrabber (see Solution 2 below for the details on how to
use PriceGrabber) to find places that sell it. There may be
other makes around too. I've never tried any so know nothing
about them. This could be a good solution if this phone is
compatible with the phones where you work—but it is obviously not a multi-line business phone.
If you want to use the physical phone already at your place of
work, then solutions 2 or 3 could work for you.
Solution 2: You can also use your
MaxIT Bluetooth neckloop—since
that works so well with your hearing aids already (and cell
phone)—with the phone at your place of work.
In order to do this, you need to convert the land line phone on
your desk into a bluetooth phone. You can do this with a
bluetooth "hub". I'd recommend getting the Jabra model
A7010 Bluetooth Hub. (Prices range from about $77.00 to
$120.00 plus shipping).
Here is how you set it up. First, unplug the handset cord from
the phone base, and plug the hub into the base instead. Next,
plug the handset cord into the hub. That's all there is to it. Now
your phone is back into its original configuration and you can
use it normally—but you can now also use it with your MaxIT
Bluetooth neckloop. (One nice thing about using this Bluetooth
hub is that it will work on almost any phone, whether home or
business, analog or digital, as long as it is a phone with the
dialing buttons in the base and not in the handset.)
To use the Bluetooth hub with your MaxIT Bluetooth neckloop,
you first need to "pair" the MaxIT with the Bluetooth Hub, just
like you paired it with your cell phone (and it's just as easy).
Once you have them paired, when the phone rings, you just
pick up the handset and lay it on your desk. The Bluetooth will
activate and you will hear via your MaxIT and t-coils in your
hearing aids. When you are finished, just hang up the handset.
That's all there is to it. Neat, huh?
You can get the Jabra A7010 Bluetooth hub at various stores.
I like to use PriceGrabber as it tells you where it is available on-line and who
has the best price. To find this item, go to
PriceGrabber and in the big green "Shop For"
box, type in "Jabra A7010" and click on "Find It".
PriceGrabber will then list the various places you can get it
and their prices. The one with the best overall price (including
shipping) has "Your Best Price" in red above the price. As of
this writing, prices range from $76.84 to $120.00 plus
shipping. You may find other on-line sources that are even
cheaper—just be careful that you only deal with reputable
outfits. (Check out the "user ratings" to get a feel for how that company treats its customers.)
Solution 3: A third method is to use your land line phone
combined with a
PockeTalker, or
your Williams Sound Hearing Helper receiver if you have the
PFM350 system. This system uses the Model R31 receiver,
which has two volume controls and an external microphone
jack. It is really both a PockeTalker and an FM receiver
combined in one case. (This solution won't work if you have
the PFM300 system which uses the R32 receiver and only
has one volume control and no external mic jack.)
For this method, the equipment you'll need is a PockeTalker
or R31 receiver, a
standard neckloop or
Music Links and a Mini-recorder control which you can get from
Radio Shack (part number 43-1237, $17.99).
To set things up, unplug the handset cord from your phone
base, and plug the Mini-recorder control into the base instead.
Next plug the handset cord into the Mini-recorder control. This
gives your phone its original functionality. Now to soup it up,
you plug the 1/8" plug from the Mini-recorder control into the
microphone jack on your PockeTalker or R31 receiver. (Make
sure the switch on the Mini-recorder control is set to "REC",
not "PLAY".) Finally, plug the neckloop (or Music Links) into
the earphone jack and you are all set. (To use the Music Links, you'll require a
stereo to mono adapter from Radio Shack—Part No. 274-368 $2.99.)
When the phone rings (assuming you already have the
neckloop or Music Links in place), you just turn the
PockeTalker or R31 receiver on, switch your hearing aids to t-coil mode, pick up the handset and speak into it as you
normally would. (Note, you don't have to hold the receiver up
to your ear as you will hear via your t-coils, not via the phone
receiver, but you do have to hold the mouthpiece up to your
mouth so the person on the other end can hear you talking.)
Solution 4: Some phones have 1/8" jacks on the phone base
so you can plug in a standard neckloop or Music Links (with
adapter) and hear that way. This is a very simple solution if
you have such a phone. Unfortunately, these phones tend to
be special amplified phones for hard of hearing people and
not the phones used by businesses.
One of the nice things about using Solutions 2 or 3 is that it
doesn't matter what kind of a phone you have—whether it is
single-line or multi-line, whether it is a digital or analog phone
or whether the phone is hooked up to a PBX or not. Also, it is
very easy to move your equipment from phone to phone if
someday you change positions or get another job.
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HEARING LOSS HELP E-zine
Neil Bauman, Publisher
Center for Hearing Loss Help
49 Piston Court
Stewartstown, PA 17363 USA
Phone: (717) 993-8555
Fax (717) 993-6661
http://www.hearinglosshelp.com
neil@hearinglosshelp.com
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